Little baby Edie was born dangerously ahead of schedule. At birth she only weighed 570 grams (about 1.25 lbs) after being born nearly four months premature. A consultant later told the couple the baby girl only had about a 5 to 10% chance of survival. And just a few seconds after she was born the staff of the Neontal Intensive Care Unit had to stabilize her and whisk her away.
This is little Edie’s amazing journey after being born on the brink of death…
Edie’s skin is already maturing, but is very sticky to the touch. Her incubator is kept at 80-90% humidity to help her retain fluid
Phototherapy to help reduce jaundice and develop her skin
The monitoring machine.
First family photo. David, Esme, Sally and Edie.
Edie’s first two weeks were the most challenging. But each day her survival odds increase very slightly, but the couple is still months away from knowing if she will ever be well enough to come home
This photo is the first time Edie opened her eyes to see the world
Another attempt at breathing without a ventilator, but she didn’t last very long and was back on the ventilator a few hours later
Esme touching her little sister on the head.
Day 31 – A month old
On the wall to the right of the picture you can see one of Esme’s drawings for her little sister, nestled amongst the oxygen and medical air lines
Cuddles are really important. There’s a risk to getting Edie out of the incubator, but the benefits outweigh it. Edie is calm and relaxed the entire time.
Edie is off almost all drugs now. She is on caffeine to help stimulate respiration, but that is it
Edie looks much more like a full-term baby, but is still tiny at 830 grams (about 1.8 lbs)
Day 69 (9 weeks old)
Edie is transferred to East Surrey Hospital, which is much closer to home for the couple. She is 33 weeks + 4 days gestation, so still more than six weeks away from the day she should have been born. This picture shows a portable incubator used by the transport team from St. Peter’s.
Settling in at East Surrey.
Edie is no longer in an incubator! This is a massive but scary step. The great thing is that cuddles are so much easier
Edie is moved out of fully supportive intensive care. She is still monitored constantly though.
Edie and best friend Piglet, who was a gift from big sister, Esme
This is the first time Edie has been bottle-fed. Up to this point she has been fed by nasogastric or oral gastric tube
She is going home on an oxygen supply, which will make things interesting.
Edie is learning to read! Her oxygen flow rates are being reduced every few weeks and the hospital loans us an oxygen saturation data logger after each reduction to see how well she copes with the change.
Edie is getting much better at focusing.
Esme is a kind and gentle big sister
Edie is now over 5 months old and about 6 weeks past her original due date. She has been attempting to smile for a few days
One of the many specialists involved in Edie’s care, a dietitian, has advised the couple to start weaning, even though Edie is still tiny (about 9 lbs / 4 kg now). She takes her first few tastes of rice pudding without fuss
Just a day after coming off the oxygen supply Edie is sleeping well, but has been a bit grouchy at the extra effort she is having to put into breathing unsupported.
No longer necessary to count the days as Edie is nearly fully recovered!
Very happy as it’s dinner time
Trying on Esme’s Snow White costume.
Mango purée face cream
Looking like Jack-Jack from The Incredibles
Lunch at the Natural History Museum. Lunch is serious business
A family outing to Godstone Farm. What a beautiful transition little Edie has gone through.