Brianna began having dozens of devastating seizures per day. She lost her ability to speak, needed help walking, and had very little balance. Doctors performed surgery to lengthen her tendons at age 16, but the end result wasn’t quite the mobility improvement her parents hoped, and she still needs assistance to walk.
During good months, her mom said, Brianna might go three weeks without a seizure, and when that’s the case, the race is on to help her regain some of the skills she once had. She seems to have an adverse reaction to a lot of medications, including anti-seizure drugs, so her family made the decision to gradually eliminate the prescribed medicines that seemed to do more harm than good. They tried a ketogenic diet to relieve her symptoms naturally, but over time, discovered it, too, caused more problems than it solved.