“When I think of the day Van will have to face kids his age, so many emotions go through my mind. I hope they’ll accept him, play with him, and show him kindness, as he doesn’t know any other way in life. He is pure joy, and he has taught us more in his short two years than we could have ever learned in a lifetime.”
Tamara told us about a cutting edge treatment for patients with RTS, where doctors use a V-beam laser to destroy blood vessels just under his skin that make up the rash. It could eliminate the redness on his cheeks and keep it from spreading to other parts of his body, which will ultimately lead to increased self-confidence and less stress as he grows up. We thought it was a great way for Chive Charities to help, so we provided a grant for $3,600 to cover all 12 V-beam treatments for Van.