Last month we posted a story about JD Manuel, a boy with the first documented case of both Hydrocephalus and SMA. Without getting into too much detail, it’s a deadly combination of a respiratory disease and a neuromuscular disease. The combined effects of which causes near-complete motor nerve debilitation, all while you choke to death. Let’s call it just about the worst thing ever. JD wasn’t supposed to see his 16th birthday but here he is today at 19 years of age.
The Spain family had outgrown their current vehicle and badly needed an upgrade to transport JD to his doctor appointments. Chive Charities donated $100,000 to purchase a Freightliner and retrofit the monster van into an ADA life support vehicle. It’s been a life-changing tool for the family.
Also, as an afterthought I mentioned that JD loved the Houston Texans. JD won’t go anywhere without his Texans hat. He’s always wanted to attend a Texans game and see his favorite player, J.J. Watt. There was really no call to action in my story though. The Texans were in the midst of a playoff hunt and I wasn’t trying to cause any unwanted distractions.
Enter good guy, J.J. Watt. Less than two hours after the story went live, J.J. got ahold of us and asked if JD might like to come to the Houston vs. Jaguars game? Um… YES PLEASE.