They say there’s no place like home. But what if there’s no place but home?
When this global pandemic first made the news in early Spring 2020, a short quarantine seemed disruptive but reasonable. Doable, even. As those weeks extended and life as we knew it seemed a distant thing of the past, staying home felt less like a reprieve and more like a punishment.
Through that time, we all caught a small glimmer of what life can be like with a rare medical diagnosis. For LaZion and his family, the last year has been more or less business as usual. Isolation? They’ve been there. Cabin fever? You bet. LaZion is almost three years old, and he’s spent more than half of his life either confined to the hospital or stuck at home. All he knows are walls.