In: Chive Charities, Humanity
A family holding their breath for a better future (18 photos)
This pattern might seem too paranoid, but given the situation, it’s far from it. Ronni and Dave live in a constant state of panic. Their baby boy, with the big blue eyes and the chubby cheeks that melt their hearts, has faced death more often than any of us most likely ever will. Luke was born with a rare genetic condition, a mutation of the SCN8A gene. It affects Luke’s brain cell function, causing neurological problems including epilepsy and learning difficulties. Some days Luke has more seizures than can be counted, in excess sometimes of hundreds per day. And sometimes, he stops breathing.

