When we set out to share DJ’s story, it looked a lot different than the one we’re going to tell.
Last week, DJ celebrated his third birthday. It didn’t include a cake or party hats or piles of newly unwrapped presents. There was no joyous celebration. Instead of cheerful voices singing “happy birthday,” there were hushed conversations of nurses and doctors, steady beeping of machines, and a heavy sense of fear and uncertainty that filled the room. Right now, DJ is fighting for his life.
When we talked to his mom, Kelly, at the beginning of November, things were going about as normal as expected for a toddler with 37 medical conditions, 13 of which are rare.
It started with her complicated pregnancy with DJ, and after visiting a high-risk specialist, she had an ultrasound experience that stayed with her to this day.