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Do you want to know one of the first signs that you’re dealing with a rare disease? Your daughter’s anesthesiologist has to google it.
When Ellie Wahlert was born, neither her parents nor the doctors in her community knew much – if anything – about her condition.
She was born with a rare medical disease called diastrophic dysplasia, a hereditary genetic disorder that affects the development of the hands, face, ears, feet, hips, legs, and spine.
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