In football, there’s a term called the “blindside.” It’s used to reference the opposite direction of where the player – most often the quarterback – is facing when in the pocket. They can’t see what’s coming, so they rely on others to watch out for them and provide support until they’re in a less vulnerable position. It’s not all that different from becoming part of the rare medical community.
More often than not, families are blindsided by complex and medically-rare diagnoses. In just the last few weeks, we’ve shared stories about Kai and Eason. Neither of their respective medical conditions were detected until birth and Eason’s is yet to be named. The stress, fear, and anxiety that must cause is difficult to comprehend.
It’s a feeling that Lee and Mayra know too well.