When I first started meeting and talking to rare medical families, it was like taking a crash course in everything you think would be covered for them that isn’t.
Take electric wheelchairs, for instance. They are insanely heavy – typically at least a couple hundred pounds – and not easily disassembled.
But insurance doesn’t cover the cost of wheelchair-accessible vehicles, so if a loved one requires the use of an electric wheelchair, families either need to come up with tens of thousands of dollars to buy their own ADA vehicle, or they remain at home, relegated to unreliable medical transport services for hospital or doctor visits. Want to take your child to the park? Hoping to visit family? Not unless you have an ADA vehicle.