When baby Merrick was rushed to the Emergency Room after he became limp and very pale, the triage nurse tested his blood oxygenation right away. Her face turned as white as a sheet as she looked at the results. “It says 45%,” she whispered, “but there’s no way that’s right. Most people are at 98 or 99%. He’d be unconscious…”
A homeless man named Marcus walked into a Minneapolis-based cafe earlier this month looking for some spare change. What he didn’t know is that he walked into the right cafe and instead of a few dollars, Marcus got a second chance at life.
Today is World Rare Disease Day. To raise awareness we’re sharing a very special story about a little girl named Aubree, who is affected by a disease so rare… it hasn’t been diagnosed yet.
Aubree’s story is one of perseverance and resilience, a daily search to find a diagnosis, and hopefully one day, a cure. Read and share her story to show your support of the underdogs!
At 4 months old, Tripp’s world changed. Within weeks he regressed, losing his mobility and functions without knowing why. But now, at age 3, his life has changed again – this time for the better.
Fate stepped in and showed Tripp and his family what they’ve been looking for all along.
When side effects from Megan’s rare diagnosis stopped her from doing the things she loved, she turned into a recluse. From her window she watched her life go by, but 18 year-old Megan wasn’t a part of it.
Now, with a wheelchair-accessible van, Megan got her freedom back. And with a community behind her, she now has the courage to say ‘yes’ to a life of adventure.
2-year-old Taytem was diagnosed with the ultra-rare Hurler Syndrome and told if she did not receive treatment she would die. Now, she’s doing better than ever.
This little fighter inspires a community with a courage that is disproportionate to her size.